The Difference Between Brain Fog and Forgetfulness by S.E. Carson

Many people who live with invisible illnesses such as (Panhypopituitarism, FIbromyalgia, MS) or chronic pain often experience Brain Fog.

It's not that a person is being forgetful but they are dealing with physical symptoms which makes life harder to function. Amazing, intelligent people who are doing the best they can.

Remember how impossibly exhausting it was to run your meeting the last time you went to work sick? Brain fog is a lot like that, except it persists. A fog can linger for several days, sometimes even weeks.

Please read the article below. It may help raise awareness for people who don't often speak up for themselves and identify as having health issues. Sometimes it may take them longer to reply but please be patient and not dismiss them, show empathy instead of disdain.

One day it could be you.

THE DIFFERENCE BETWEEN BRAIN FOG AND FORGETFULNESS  

BY S.E. CARLSON

Growth Hormone approved on PBS!

Yay!!!! Growth Hormone Replacement therapy for people with Growth Hormone Insufficiency!

Great news for people with growth hormone insufficiency in Australia. Growth Hormone is now on the Pharmaceutical Benefits Scheme which means free Growth Hormone!

I’ve waited for this day since I was 19 and cut off Growth Hormone after three years on it. I grew to 154cm and noticed a difference in my metabolism and quality of life. I have Panhypopituitarism, a disease of the pituitary caused by an underdeveloped pituitary gland and absent pituitary stalk. It affects my health on a daily basis and means that I have no growth hormones in my system.

I’m so happy that the government has listened.
I’m seeing my Endocrinologist this month and I will definitely be bringing it up with her.

I can’t wait!!!!! 😀🎉👍🤩

http://www.health.gov.au/…/F34F94FB9E9D27D3…/$File/GH164.pdf

My post to a Talipes equinovarus Facebook Group

I am 45 years of age and have Clubfeet. I was also born with Panhypopituitarism due to the fact that I received an insufficiency of growth hormone in the womb and my pituitary gland didn't develop.

I had several operations on my tendons and at age 9 I had invasive surgery where the orthopaedic surgeons broke my bones, chiselled them, re-set them and placed a surgical staple in my calcanae. Looking at X-Rays you can see where they fused two of my toes together at the base and the surgical staple.

Due to Panhypopituitarism, I was born 2 1/2 years shorter than my peers so I went on growth hormone when I was 16-19 and when I stopped using the growth hormone injections I was supposed to have an operation on my heels. I was at University and didn't want to interrupt my studies so put off the operation.

Now I'm 45 and I still walk over my heel, have week ankles and can't stand for long periods. I wear Colorado boots to lock the heel, which is restrictive and heavy. It is my dream to have an operation on my feet and finally be able to wear something other than Colorado shoes and still be supported and not jar my ankles when walking or standing.

I am very nervous about the surgeries and have only just started researching Orthopaedic surgeons in Brisbane, Australia, however, I did move into a house that is disability friendly.

If you or someone you know has had reconstructive heel surgery as an adult I'd love to hear from you. This operation is way overdue but at the time the only doctors near me where considered 'butchers' by the patients and I wasn't willing to make things worse.

My Congenital Panhypopituitarism story

When I was 13 I was diagnosed with Congenital Panhypopituitarism ( CPHP ) and this is my story

https://www.youtube.com/watch?v=v1B9_Vy2uqQ&feature=share

Switching from Cortisone Acetate to Prednisone

After 33 years (from 13 years old), an endocrinologist has finally agreed to put me on prednisone. No more taking three doses of Cortate a day (and forgetting noon and evening doses most days and feeling exhausted).

My Endocrinologist suggested switching to slow release prednisone and I hope it makes a difference